With a condition so rare that only one
in 3000 babies born have this
neuromuscular disorder itís easy to comprehend how
alienated anyone with Arthrogryposis Multiplex Congenita (AMC) must feel.
Through the hard work of one motherís vision and an army of members, the AMC
Support group has helped bridge the gap with the power of the internet. It is
not only the groupís mission to provide and encourage a greater understanding
and awareness of this condition, but also to provide a support system. To help
those that have felt all their lives an outcast or alone, meet others who have
lived that same life, to meet other families who have the same concerns and to
provide a resource of information.
But meeting on-line is not enough. Itís hard to explain to a mom exactly how
another mom has taught her child to sit up without the use of his arms, or how
one child learned to stand. What so many people take for granted: the ease of
walking, typing, eating and breathing those with AMC have had to struggle to
adapt to this world. Our conventions solidify that bridge and strengthen the
bond of our AMC family. Once a year we come together, charge NO admission fee,
bring professionals, doctors, physical therapists, occupational therapists,
provide workshops and invite people throughout the world to learn, share, laugh,
cry and grow.