Arthrogryposis
Multiplex Congenita Support Inc.
We are excited to announce that we have been approved for our 501(c) 3
non-profit status!!!!!
History:
Ani Vinson created AMCsupport.org, an online Arthrogryposis Multiplex
Congenita (AMC) support group in July of 2005. Ani, the mother of
Abigail Marie Vinson, a child born with
Amyoplasia, a form of Arthrogryposis, created the group because at the time,
there was very little information available to families due to the rare
occurrence of AMC. The online group was a direct result of the high volume of
emails she received from families regarding a website she had created to
document her daughter’s progress. During the ensuing years, the interest and
activity of the online support group grew and blossomed. From the original 30
members, membership has grown to over 400 families. Once a strictly online
community, AMC support brought families together for The First Annual AMC
Convention, a real world gathering, in Chicago, Illinois, during the summer of
2006. A second convention held in Arlington Texas, July 2007 brought even more
families together. The largest portion of Ani’s dream was to form an IRS
recognized 501(C)(3) corporation that would continue her support of families and
medical professionals well into the future. With the help of an army of
volunteers, and the generous contributions of Roland Pieper, an attorney whose
granddaughter has Arthrogryposis, a Board of Directors was created, and work
began on the daunting process of becoming a non-profit corporation. Submission
of the application for the approval of the IRS occurred on October 6, 2006. On
September 7, 2007, Arthrogryposis Multiplex Congenita Support, Inc. was granted
Non-profit status as a 501(C)(3)corporation, and that dream became a reality.
Mission:
To provide and encourage more understanding and mutual support among anyone
affected with the diagnosis of Arthrogryposis Multiplex Congenita (AMC). To
create a higher standard of AMC awareness by means of Conventions, Meetings, and
Studies.
Vision Statement:
To provide educational material to new parents, or soon-to-be parents regarding
the diagnosis of Arthrogryposis Multiplex Congenita (AMC).
To provide a resource of information to the medical field to include but not
limited to occupational therapists, physical therapists to assist them in the
treatment of a child or person with the diagnosis of AMC.
The Board of Directors (BOD): bod@amcsupport.org
Ani S. Vinson, Founder
Rosalinda Morales, President
Theresa Lucas, Vice-President
Jennifer Keeton , Treasurer-Secretary
Michelle S.
Parliamentarian
Wendy Sifuentes, Member-at-large
Donna Carleton, Member-at-large
Melissa Dickinson, Member-at-large
MaryBeth Eberhard, Member-at-large
Michele, Theresa, Rosalinda, Donna, Wendy, Jennifer, Ani
AMCSupport Convention (Texas) 2007
Ani, MaryBeth, Michele, Theresa, Melissa
Jingle & Jam (Ohio) 2007
*Note
from the BOD:
We have lots of things that we are working on and promise to be diligent in
communicating everything to not just at the board of directors level but to all
the members of AMC Support.Org. We are all here to listen and hear you and do
what is in the best interest for the whole group. And I ask that you feel free
to challenge and question any one of us on a matter that you are concerned with.
2008 Ohio Convention Committee:
Co-Chairs: Tracey, MaryBeth, Michele
Charity Committee:
Theresa, et al
Typically each sub-committee will be headed by a board of director, but we will
need a group effort for all of our events to come to fruition. If you have
experience in either area or would like to be on either the Convention Committee
or the Charity Committee please let us know. We’ll take all the help we can get.
BY-LAWS OF Arthrogryposis Multiplex Congenita Support,Inc A NON-PROFIT ORGANIZATION
Affirmative Action Plan
It is the policy of Arthrogryposis
Multiplex Congenita Support, Inc. (AMCSI), to provide equality of opportunity in
participation for all on committees and other activities. AMCSI does not
discriminate against people on the basis of race, color, gender, sexual
orientation, religious affiliation, national origin, age, mental or physical
disability.
The affirmative action plan means that AMCSI will consider people on their
merits and for their capacities to do what is expected or required of them. The
intent of this affirmative recruitment is to insure that the final pool of
candidates for any AMCSI position will include members from groups that until
now have been under-represented.
Arthrogryposis Multiplex Congenita Support, Inc. believes a supportive climate
enables all people to make an optimal contribution to the work of the
organization. To that end, we seek to make AMCSI activities accessible to people
with disabilities and all members of under represented groups.
If you have questions, comments, or concerns related to the implementation of
the AMCSI nondiscrimination policy or affirmative action plan, please direct to:
Arthrogryposis Multiplex Congenita Support, Inc.
Affirmative Action
P.O. Box 1883
Salyersville, KY 41465