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Board of Directors
Medical Advisory Board
Past Board of Directors
Served as a Conference Co-Chair for the 1st annual AMC Conference, Aug 3-6th. 2006. in Chicago Illinois. She enjoys spending time with her family, Isabella, Thalia, Lil Louie (AMC) and Lily. She works fulltime and enjoys volunteering at her Church. Rosalinda currently resides in Nixa, Missouri.
Mom to Kelsey and Joey (AMC). She works fulltime as a Ultrasonographer and currently resides in Indianapolis, Indiana.
Technical Director Jeroen Tebbens Technical Director, also known as “King J”. Jeroen provides invaluable technical support to the Board of Directors. Jeroen resides in IJsselstein, Netherlands, and maintains the technical updates for both AMCSupport.org and AMCSupport.org/shop. Jeroen earned a degree from Polytechnic University (Netherlands) in Internet Communications and Computer Science. He is employed by Dimension Data Netherlands as an Implementation Consultant for Operations Management and Security. Jeroen does not allow his AMC to hold him back; in his spare time, he enjoys riding his motorcycle and swimming competitively with Masters Swimming, Netherlands.
Committees Fundraising: Jennifer Keeton, Theresa Lucas 2010 Conference: Marybeth Eberhard, Savanna Keeton, Maureen Goede, Theresa Tamash 2011 Conference: Michele Schaffer, George and Suzanne Rudder, and Rosalinda Morales Financial: Jennifer Keeton, John De La Torre Membership: Theresa Lucas, Savanna Keeton Chat: Beverly Hanset-Burch, Tracey Schalk AMC Awareness Day: Zak Purdon
Arthrogryposis
Multiplex Congenita Support Inc.
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Founder : Ani Samargian
President: Theresa
Lucas
is a
Vice President
and Program Director: Michele
Schaffer and her husband Allen
have four children, David, Andrew-AMC, Christopher, and Kaytlin.
After working as an elementary and secondary Special Education teacher, she
chose to become a full-time mom. She joined the Board of Directors of Arthrogryposis Multiplex Congenita Support, Inc., in 2006 and served as a
Conference Committee Co-Chair in 2008. She took over as Program director in
Aug. 2010. She enjoys spending time with her
family, volunteering at her Church and in her children’s schools, singing with
The Voices of Ohio, and serving on the Board of Directors of Yunnan Kids
International, a non-profit organization that supports the children who live in
Yunnan, China. Michele and her family currently reside in Columbus, Ohio.
Treasurer: Jennifer Keeton,
is a driving force behind AMC
Support. She serves as a website administrator for AMCSupport.org and provides
the organization countless hours of “behind the scenes” work to assure that
AMCSI operates effectively. Jennifer holds a Bachelors Degree in social
work from Morehead State University. Jennifer currently resides in Salyersville,
Kentucky.
Secretary: Maggie Howell:
Joined the AMCSI BOD in Sept. 2010 as Member at Large, then took over as
Secretary Jan 2011. Both she and her husband are very active
volunteers working on projects that benefit people from the local community to
international projects. Having children with special needs has been a very
rewarding experience and has been the primary motivation for Maggie becoming an
advocate for people with “diff” abilites. She has been an active member of
amcsupport.org since 2005, serves as head moderator for the support forums, and
is actively the AMCSI's merchandise store shipper. In her spare time she enjoys
spending time with her family, playing the role of cheer mom, and enjoys
practicing martial arts. Maggie, her husband Chorey, and their six kids:
Erica, Jonah, Mason, Harrison, Alayna, and MinJee, reside in a Cleveland, Ohio
suburb.
Parliamentarian: Doris
Heckert, Parliamentarian, and her
husband Jonathan are the parents of a beautiful miracle named Jackson who
has AMC. Doris serves as the Parent Component of Louisiana's Early Intervention
program and sits on the Parent Advisory Council of Woman's Hospital. She enjoys
spending time with her family, volunteering at her church, and serving as a
Parent-to-Parent volunteer for a local hospital. Doris and her family currently
resides in Baton Rouge
Member-at-Large:
Tracey Schalk,
served as Conference Co-Chair
for the 2008 AMCSI Conference in Columbus, Ohio. She has arthrogryposis, amyoplasia type in all four extremities. She is a senior at Ohio State
University majoring in Political Science with minors in English & Disability
Studies. Tracey currently resides in Columbus, Ohio.
Member-at-Large:
Zak Purdon: 
Dr. Harold van Bosse
is on staff at the Shriners Hospital for Children in Philadelphia, where he has
had the opportunity to develop a specialty practice in the treatment of children
with arthrogryposis. In addition, he enjoys treating the entire realm of
pediatric orthopedic surgical conditions, with special interests in limb
deformity, neuromuscular disease, and pediatric spine deformities. 
Dr. Judith Hall
is a clinical geneticist and
pediatrician. She trained at Wellesley College, the University of Washington
School of Medicine, and the Johns Hopkins Hospital. She is presently Emerita
Professor of Pediatrics and Medical Genetics at the University of British
Columbia, Vancouver, Canada. Her area of research interests are human congenital
anomalies and in particular arthrogryposis (multiple congenital contractures).
She has published over 300 original peer reviewed articles, 140 chapters and
conference proceedings, and 10 books.
Dr. Hall is also the co-author of the AMC Text Atlas .
She has been involved in arthrogryposis clinics for over 35 years with a
particular interest in sorting out the causes (including genetic), natural
history, and best therapies for individuals affected with arthrogryposis. She
has published over 50 articles and chapters on arthrogryposis, and she continues
to be actively involved in learning as much as possible about arthrogryposis so
that she can help families and affected individuals.
Rosalinda
Morales AMCSI's 1st president 2006-2009. 
Melissa
Dickinson Member at Large 2008
Wendy Sifuentes,
Secretary 2007- is the “original member” of AMCsupport.org. She has served the Board
of Directors as both a Member-at-Large and secretary. Wendy is the mother to two
boys, Paul (6) and Patric (3). PJ (Paul) was born with arthrogryposis. She
works full time as a teacher’s assistant at a junior high school, and she is
currently a college junior studying Elementary Education with a concentration in
Special Education. Wendy and her family reside in Arlington, Texas. 
Marybeth Eberhard,
Program Director, Member at Large 2008
served as Co-Chair for the AMC Support Inc.
Conference in
Columbus, Ohio. In 2008, the board appointed her Program Director and she
ended that position after the 5th Conference in Lake Buena Vista Florida, 2010. MaryBeth is an advocate for home schooling
and is the loving mother of five children: Samuel, Peter, Gabriel - AMC, Lily and Joseph. Prior to being home
with her children, MaryBeth taught first and third grades in an inclusive
setting at an elementary school in Sudbury, MA. Marybeth and her family
currently reside in Honesdale, Pennsylvania. 
Secretary: Donna
Carleton, joined
the AMCSI BOD in 2006 and served as Co-Chair of the 2007 Conference. She has 11
years experience in Direct Sales as a recruiter, trainer, and special event
coordinator. Her passion for motivating and mentoring others to reach their
potential has proven successful in the industry. As a previous Director of
Youth, Donna spends the majority of her time volunteering with the youth in her
church, school system, and community. In her spare time, she enjoys reading,
traveling, and decorating. Donna, her husband Brian, and their three children,
Cole, Kerri and Kadi -AMC reside in Omaha, Nebraska.