With a condition so rare that only
one in 3000 babies born have this neuromuscular
disorder itís easy to
comprehend how alienated anyone with arthrogryposis multiplex congenita
(AMC) must feel. Through the hard work of one motherís vision and an army of
members, the AMC support group has helped bridge the gap with the power of
the internet. It is not only the groupís mission to provide and encourage a
greater understanding and awareness of this condition, but also to provide a
support system. To help those that have felt all their lives an outcast or
alone, meet others who have lived that same life, to meet other families who
have the same concerns and to provide a resource of information.
But meeting on-line is not enough. Itís hard to explain to a mom exactly how
another mom has taught her child to sit up without the use of his arms, or
how one child learned to stand. What so many people take for granted: the
ease of walking, typing, eating and breathing those with AMC have had to
struggle to adapt to this world. Our conferences solidify that bridge and
strengthen the bond of our AMC family. Once a year we come together,
bring professionals, doctors, physical therapists, occupational therapists,
provide workshops and invite people throughout the world to learn, share,
laugh, cry and grow
UPDATE May 26th, 2011!!!
UPDATE April 15th, 2011:
AMCSI's room block with the Hyatt Regency Crown Center are filled!
We have secured an additional (20) rooms per night for Thursday, Friday and
Saturday at the Embassy Suites in Kansas City.
This hotel is located 2.8 miles from the Hyatt.
King Suites with sofa sleeper at the rate of $109.00 plus tax. Double Bedded
Suites would be $129.00 plus tax per night.
$10 self parking and $15 valet parking per day.
They have 2 double bedded ADA accessible suites available at this time.
They offer complimentary cooked to order breakfast and 2 hour complimentary
cocktail reception for hotel guests.
To make reservations, Call hotel directly at (816) 756-1720 prior to June 7,
2011 and ask for "AMCSI room block."
Embassy Suites Hotel Kansas City Plaza
220 West 43rd Street
Kansas City, Missouri 64111
**You may be able to find
alternative hotels at various price points near The Crown Center; however,
AMCSI cannot verify the quality of rooms or service**
UPDATE: April 6th: AMCSI has reached the limit in our room block with the
hotel. We are unsure if we will be able to add any more rooms at this hotel.
We are in the process of obtaining an additional room block in another
hotel. We will give you this info when it becomes available.
AS OF Feb.
4th, the hotel ONLY has King beds available, We have been
advised to inform our attendees to go ahead and book the king
bed for now and ask for a rollaway, which the hotel has agreed
to supply at no cost to you, and add somewhere in comments
that they would prefer a double.
are no guarantees, But we are working on getting more doubles
and will not know until after the 2nd of April. Please know
the Committee and BOD are working hard to get everything work
out, sorry for the inconvenience.