With a condition so rare that only one in 3000 babies born have this neuromuscular disorder it

With a condition so rare that only one in 3000 babies born have this neuromuscular disorder it’s easy to comprehend how alienated anyone with Arthrogryposis Multiplex Congenita (AMC) must feel. Through the hard work of one mother’s vision and an army of members, the AMC Support group has helped bridge the gap with the power of the internet. It is not only the group’s mission to provide and encourage a greater understanding and awareness of this condition, but also to provide a support system. To help those that have felt all their lives an outcast or alone, meet others who have lived that same life, to meet other families who have the same concerns and to provide a resource of information.

But meeting on-line is not enough. It’s hard to explain to a mom exactly how another mom has taught her child to sit up without the use of his arms, or how one child learned to stand. What so many people take for granted: the ease of walking, typing, eating and breathing those with AMC have had to struggle to adapt to this world. Our conventions solidify that bridge and strengthen the bond of our AMC family. Once a year we come together, charge NO admission fee, bring professionals, doctors, physical therapists, occupational therapists, provide workshops and invite people throughout the world to learn, share, laugh, cry and grow.

5 years ago, without a non profit status, without much money, Ani Samargian, Michelle Payne and Rosalinda Morales organized the very 1st AMC Convention held in Chicago Illinois with around 100 in attendance.

Please join us and help us celebrate 5 years!

Convention Overview

A Convention in Support of Families Affected by Arthrogryposis Multiplex Congenita.

Target Audience: The target audience of this convention is parents and caregivers of children with AMC, adults with AMC, physicians, physical therapists, occupational therapists, early interventionists and any others interested in learning more about Arthrogryposis Multiplex Congenita.

Purpose: The purpose of this convention is to increase awareness of AMC. Expand the knowledge of parents and professionals about this rare disorder. To provide families comfort, support and hope through other parent's journeys and through the encouraging life stories of Adults with Arthrogryposis.

Objectives: to provide support, comfort and information to families living with arthrogryposis.