With a condition so
rare that only one in 3000 babies born have this
itís easy to comprehend how alienated anyone with Arthrogryposis Multiplex
Congenita (AMC) must feel. Through the hard work of one motherís vision and an
army of members, the AMC Support group has helped bridge the gap with the power
of the internet. It is not only the groupís mission to provide and encourage a
greater understanding and awareness of this condition, but also to provide a
support system. To help those that have felt all their lives an outcast or
alone, meet others who have lived that same life, to meet other families who
have the same concerns and to provide a resource of information.
5 years ago, without a non profit status, without much money, Ani Samargian, Michelle Payne and Rosalinda Morales organized the very 1st AMC Convention held in Chicago Illinois with around 100 in attendance.
Please join us and help us celebrate 5 years!
A Convention in Support of Families Affected by Arthrogryposis Multiplex Congenita.
Target Audience: The target audience of this convention is parents and caregivers of children with AMC, adults with AMC, physicians, physical therapists, occupational therapists, early interventionists and any others interested in learning more about Arthrogryposis Multiplex Congenita.
Purpose: The purpose of this convention is to increase awareness of AMC. Expand the knowledge of parents and professionals about this rare disorder. To provide families comfort, support and hope through other parent's journeys and through the encouraging life stories of Adults with Arthrogryposis.
Objectives: to provide support, comfort and information to families living with arthrogryposis.
Cost to Attend: This convention is free for anyone but registration is required!
AMCSI Merchandise store at Convention will accept Cash & checks ONLY
Click the picture to go to the page
Registration Form (Families) Convention Preview
REGISTRATION FORMS CLOSED. EMAIL firstname.lastname@example.org for more info
Registration Form (Medical Professionals/Vendors/Exhibitors/Speakers/Volunteers) 2010 Convention Committee
Pre-Order form closed Hotel Information
Front of Shirt Back of Shirt Purchase t-shirts in Florida $12 each
Fundraising Agenda TENTATIVE SCHEDULE NOW UP
FL Related Websites and Visitor Information and Attractions Info on Grants for Individuals
to attend Conventions. (listed by state)
Reach for the Stars Notes and Business Volunteer's needed!
ads Messages of Individual and Family Support
(deadline June 25th) DEADLINE PAST, THANK YOU
FOR YOUR SUPPORT!
We want your old AFOs! Vehicle Rental deal
Please consider donating your outgrown braces.
Florida Convention Committee AMCSI Board of Directors