With a condition so rare that only one in 3000 babies born have this neuromuscular disorder itís easy to comprehend how alienated anyone with Arthrogryposis Multiplex Congenita (AMC) must feel. Through the hard work of one motherís vision and an army of members, the AMC Support group has helped bridge the gap with the power of the internet. It is not only the groupís mission to provide and encourage a greater understanding and awareness of this condition, but also to provide a support system. To help those that have felt all their lives an outcast or alone, meet others who have lived that same life, to meet other families who have the same concerns and to provide a resource of information.

 

But meeting on-line is not enough. Itís hard to explain to a mom exactly how another mom has taught her child to sit up without the use of his arms, or how one child learned to stand. What so many people take for granted: the ease of walking, typing, eating and breathing those with AMC have had to struggle to adapt to this world. Our conventions solidify that bridge and strengthen the bond of our AMC family. Once a year we come together, charge NO admission fee, bring professionals, doctors, physical therapists, occupational therapists, provide workshops and invite people throughout the world to learn, share, laugh, cry and grow.

5 years ago, without a non profit status, without much money, Ani Samargian, Michelle Payne and Rosalinda Morales organized the very 1st AMC Convention held in Chicago Illinois with around 100 in attendance.

Please join us and help us celebrate 5 years!

Convention Overview

A Convention in Support of Families Affected by Arthrogryposis Multiplex Congenita.

Target Audience: 
The target audience of this convention is parents and caregivers of children with AMC, adults with AMC, physicians, physical therapists, occupational therapists, early interventionists and any others interested in learning more about Arthrogryposis Multiplex Congenita. 

Purpose: 
The purpose of this convention is to increase awareness of AMC. Expand the knowledge of parents and professionals about this rare disorder.  To provide families comfort, support and hope through other parent's journeys and through the encouraging life stories of  Adults with Arthrogryposis. 

Objectives:
to provide support, comfort and information to families living with arthrogryposis. 

Cost to Attend: This convention is free for anyone but registration is required!

AMCSI Merchandise store at Convention will accept Cash & checks ONLY

 


Click the picture to go to the page

Registration Form (Families)                                                                                               Convention Preview

REGISTRATION FORMS CLOSED.  EMAIL florida@amcsupport.org for more info

Registration Form (Medical Professionals/Vendors/Exhibitors/Speakers/Volunteers)           2010 Convention Committee                                                                                                                                                                                                                           

Pre-Order form closed                  Hotel Information    

Front of Shirt                          Back of Shirt         Purchase t-shirts in Florida $12 each

 

Fundraising                                                                                              Agenda TENTATIVE SCHEDULE NOW UP

 

FL Related Websites and Visitor Information and Attractions             Info on Grants for Individuals  

                                                                                                                                to attend Conventions. (listed by state)

Reach for the Stars Notes and Business                                              Volunteer's needed!     

ads Messages of Individual and Family Support                                                                

(deadline June 25th)  DEADLINE PAST, THANK YOU

FOR YOUR SUPPORT!

 

We want your old AFOs!                                                                Vehicle Rental deal

Please consider donating your outgrown braces. 

 

                                                                                               

Florida Convention Committee     AMCSI Board of Directors